GAMIAN-Europe calls for concrete action to empower those affected by mental ill health

Empowering people affected by mental ill health is beneficial to individuals and their carers. It is also crucial for developing more patient centered, efficient and cost-effective health systems.

This is the key message of a comprehensive Call to Action launched by GAMIAN-Europe today.
The Call, developed with the direct input from a variety of leading EU-level and national (mental) health stakeholders, addresses what can be undertaken concretely to overcome the current pervasive disempowering attitudes and behaviours towards people affected by mental ill health.

GAMIAN-Europe, a patient-driven organisation advocating the rights of those affected by mental ill health, developed this Call as one of its priorities as the huge prevalence and impact of mental health conditions cannot be overlooked: 11 % of the European population experience mental disorders every year. The proportion of national health budgets devoted to mental health ranges between 4% to 13% across the EU.

Mental health conditions go hand in hand with substantial costs and consequences impacting on individuals, families and carers, health and social systems, the economy and society as a whole. As a consequence, there is an obvious need to address these conditions in the most effective and appropriate way. Empowered patients, managing their own care and treatment, can help address this need.

While the notion of and need for patient empowerment has gained ground for physical health conditions in recent years, this is not generally the case for those affected by mental ill health. Likewise, when it comes to physical health, patients are generally viewed as sufficiently competent to self-manage their treatment and care – as opposed to those affected by mental health problems. The Call therefore underlines that most people with mental ill health, most of the time, do have the competence to self-manage their treatment and care.

Clearly, perceptions and services should be changed to reflect the need for more empowerment and patient involvement in the field of mental health. The Call to Action urges the various different categories of stakeholders involved to take appropriate action to effect progress in their specific areas of expertise.

The Call to Action has already been endorsed by some 25 EU-level and national (mental) health-related organisations as well as by a number of MEPs. GAMIAN-Europe is now warmly inviting all interested organisations to also endorse the Call, as widespread support for its principles and recommendations will stimulate and facilitate implementation across the EU.

The Call to Action is available here: https://www.gamian.eu/wp-content/uploads/GAMIAN_Call_to_action_Final.pdf

Introduction of the Call and list of endorsers: https://www.gamian.eu/call-to-action-2609/

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Interactive playbook launched to help support carers of people with schizophrenia

EUFAMI is excited to launch the ‘Schizophrenia – Carer Playbook’, a project supported by Janssen Pharmaceutica NV to provide guidance and advice to carers of those living with schizophrenia, helping them to navigate the struggles they may face. We understand and appreciate that being a carer is often far from easy, and can feel overwhelming at times. The internet provides a lot of information, and whilst this is good, the sheer volume available can be confusing and not all of it is reliable. In response to this, we decided to develop the ‘Schizophrenia – Carer Playbook’.

The content of this interactive PDF has been informed from the experiences of patients, carers and healthcare professionals, to offer tips and tricks covering a variety of topics. The playbook itself focuses around four patient/carer stories; we follow Marie, Álvaro, Klaus and Anna, as they share their experiences of preparing for appointments, deciding on treatment options, looking after their own wellbeing and tackling the stigma which is unfortunately so prevalent around schizophrenia.

At EUFAMI, we want to empower carers, giving them the tools they need to make the positive and profound impact they have on the person they care for, day in and day out. While schizophrenia is a chronic and long-lasting illness, we know that it is possible to live a good and fulfilling life with proper treatment and management. The role of carers is critical; with nine out of ten involved in reminding the people they care for to take their medication, over half making treatment decisions, and half regularly helping with the more practical parts of life, such as transportation and providing meals.

Research tells us that the health and wellbeing of carers can be negatively impacted by their role as a carer, however it doesn’t have to be this way. Knowing your limits and setting boundaries is key to stay well, and we hope that the advice contained within the playbook will help with this.

It is our hope that through the ‘Schizophrenia – Carer Playbook’, we can support those caring for the 21 million people worldwide who face schizophrenia.

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About us 1

EUFAMI was founded in 1992 after a congress, which took place in 1990 in De Haan, Belgium, where carers from all over Europe shared their experiences of helplessness and frustration when living with severe mental illness. They resolved to work together to help both themselves and the people they cared for.

EUFAMI is a democratic organisation, registered in Belgium as an international non-profit organisation. We have an ongoing commitment to improving care and welfare for people affected by mental ill health. We also enable our member organisations to act jointly at a European Level, combining their efforts and sharing experience.

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World Mental Health Day 2018 – Young People and Mental Health In a Changing World

Caring for a young person when they are affected by mental ill health in their late teens or early twenties carries with it some specific worries.

Will they be able to finish their education? How will their financial position be affected? Will they find it difficult to form healthy relationships? What will happen when I am too old to care for them?

Leaving school, leaving home, starting university and entering the world of work are major life changes which could trigger mental ill health in young people.

More than 75% of the caregivers who took part in our Caring4Carers survey were looking after their son or daughter.

Meanwhile, young carers are too often hidden, forgotten and ignored.

There is a huge risk that young people caring for a relative with mental ill health could become ill themselves.

We believe young carers must be given special attention because support has been found to dramatically improve their lives.

Supporting carers of young people, and strengthening their position is a key part of our mission at EUFAMI.

We are pleased to support World Mental Health Day 2018, which is highlighting young people and mental health in a changing world.

More information on this year’s theme can be found here: http://www.who.int/mental_health/world-mental-health-day/2018/en/

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Our Projects

European Awareness Campaign
Connecting Sport & Physical Activity with Mental Health

ΜENS Project

«Life is like a bike. To keep your balance, you have to keep moving»: Albert Einstein combines in one sentence the laws of Physics with a life attitude. Another source of inspiration for the holistic approach of Mental Health through an active living, through the use of the positive effect that sport and physical exercise have on our daily mood and mental balance.

A link that aims to establish the five-month European Campaign “Life is like a bike” (February-June 2018) and will be held in parallel in 12 European countries, as the main goal of the MENS Project, the European project, which is co-funded by the European Commission under the Erasmus + program. MENS project is implemented with the involvement of 17 organizations, from 12 EU Member States, active in the field of mental health and / or sports and physical exercise.

The main objective of the MENS project, the coordinator of which is the organization “Social Cooperative Activities of Vulnerable Groups – EDRA” (www.edra-coop.gr) – is the establishment of the European Network of Active Living for Mental Health (ENALMH) highlighting the crucial meaning of the link between Physical Exercise and Sports for the prevention, the treatment and the rehabilitation in the field of Mental Health.

Campaign Material

Final Conference Material

Final Conference Minutes

The present volume is the final deliverable of the MENS project that includes the Minutes of the Final Conference which took place in Athens in June 14-15, 2018. For the policy papers a specific volume is published, including the 12 Policy Papers covering different aspects of the connection of Sport and Physical Activities with Mental Health.

Thus, in this booklet you will find the following selected materials of the Conference:

  • The detailed agenda of the Conference
  • The opening speech by the MENS Project Manager presenting the vision of the project and the overall initiative on the connection of Sport and Physical Activities with Mental Health.
  • An outline presentation of the MENS Project where a detailed description of the project development, the project aims and outcomes are provided.
  • A condensed presentation of the Research conducted during 2017 in 12 countries to collect data on the situation and connection between Sport and Physical Activity and Mental health field, throughout organizations and individuals across Europe, in order to prepare the Ground for the European Awareness Campaign that followed the next year.
  • The “Life is Like a bike” Awareness campaign
  • The Statutes of the European Network of Active Living for Mental Health (ENALMH) which is seated in Brussels, Belgium after its establishment on February 1st.

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The EU Compass for Action on Mental Health and Wellbeing

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Wahnsinn um drei Ecken (Madness around three corners)

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MENS Campaign – Life is a Bike!

The MENS Project – European Project on Sports and Mental Health has produced a video to encourage people to be more active in sports. An extensive survey (click here for the Executive Summary) carried out in the twelve countries that form partners of the MENS project clearly illustrated that physical exercise significantly contributes to mental health. The video is part of a campaign called “Life is like a bike – keep balance, keep moving!). The video in English can be viewed here. Click here to view the Press Release.

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